PA House adopts resolution marking “World Scleroderma Day”

HARRISBURG, June 28 – Today, the Pennsylvania House of Representatives adopted a resolution (H.R. 471) introduced by state Reps. Stephen Kinsey, D-Phila., and Steve Malagari, D-Montgomery, designating June 29, 2024, as “World Scleroderma Day” in Pennsylvania.

Scleroderma is a rare group of autoimmune diseases that negatively impacts thousands of Americans’ skin through the development of rough or tight patches, which may constrict the ability to move. It can also have negative consequences on the digestive system, heart, and lung functioning capabilities.

“Scleroderma hits close to home for me after losing my daughter Lanessa to this rare disease four years ago,” Kinsey said. “World Scleroderma Day intends to educate and provide a platform raising awareness of this disease, its causes, symptoms, risk factors and treatment options. I greatly appreciate my colleagues for joining me to adopt this necessary resolution.”

"This resolution represents a significant step toward raising awareness about scleroderma and supporting those affected by this debilitating disease,” Malagari said. “Prioritizing education and understanding greatly improves the lives of those living with scleroderma and helps pave the way for better treatment and support systems."

Video of Kinsey speaking about World Scleroderma Day in 2023 can be viewed here: (13) Kinsey Recognizes World Scleroderma Day 2023 - YouTube.